Here's another day's entry from Mrs. Cowman's "Streams in the Desert (for July 25). Dedicated to my Sissa Carissa and her Mom What I do thou knowest not now, but thou shalt know hereafter"
-- John 13:7 "In this life, we have but an incomplete view of God's dealings, seeing His plan only half finished and underdeveloped. Yet once we stand in the magnificent temple of Eternity, we will have the proper perspective and will see everything fitting gracefully together.
"Like as a father pitieth his children, so the Lord pitieth them that fear Him."
Psalm 103:13 As I pray for the current, ongoing sufferings of our firstborn, Carissa, and the prospects that seem so terribly bleak to us right now of MCAS as a daily reality for the rest of her life . . .
And as I pray daily for her two living siblings, with trials of their own as they still grieve the traumatic loss of their beloved little brother . . .
And even as I think of what all may h
Someone on one of the grieving sites we frequent asked what books we'd recommend to help in her struggle with bitterness over the devastating loss of her child.
After pointing her to the classic old devotional, "Streams in the Desert" by Mrs. Albert Cowman, I thought I'd better take another look at that, as it's been years since I've thumbed those pages, myself.
I found several entries that speak to what our precious Sissa (childhood nickname for Carissa Joy) is going throu
Carissa feeling calmer, more lucid, less pain. We’re thinking that it is probably just all the Benadryl she took today, keeping the symptoms at bay (unfortunately).
She also feels very drugged and discouraged at the thought of future prospects.
Karen staying the night with her and BJ. I’m seven minutes away at our house, but “on call.”
All are physically and emotionally exhausted.
Thanks again for all the prayers and kindness
I know many of you are praying.
Carissa is not stable. She has kept the emergency epi-pen right in her hand or right by her side all day so far. Meanwhile, she keeps “rescue dosing” herself with benadryl and does not want BJ to leave her for a minute. She does not want Karen or me out of shouting distance.
For an MCAS sufferer, the ER itself, holds a multitude of scary toxic smells and substances; triggers that could cause their own reaction, or severely escalate one alread
Some of you know this story well.
Our precious Carissa reminded me of it yesterday.
Thankful we had true stories like "The Hiding Place" to raise our kids on. Here is Corrie Ten Boom’s famous flea story from The Hiding Place. We lay back, struggling against the nausea that swept over us from the reeking straw.
..Suddenly I sat up, striking my head on the cross-slats above. Something had pinched my leg.
“‘Fleas!’ I cried. ‘Betsie, the place is swarming with them!’
I find that fear and anxiety are the most natural and instinctive reactions to crisis.
A roaring lion enters your space, it’s not “unspiritual” to experience a swift surge of crazy adrenaline.
Your beautiful, beloved daughter has a second anaphylactic reaction in a matter of days and has to go to ER, just shy of the two year anniversary of your son’s death . . .
I described Carissa’s health as “very frail.” After sitting with her today, I’m tempted to upgrade(?) that to
Some unknown substance triggered an anaphylactic reaction that took my daughter, Carissa, to the ER today.
Very scary. (May I say, especially when you've already lost a son).
Anaphylaxis is always serious, and can be fatal.
A shot of epinephrine and some other meds, and she is home resting now, but utterly exhausted.
This is the condition still so little known in the medical world called Mast Cell Activation Disease or Syndrome (MCAD or MCAS).
She seems to have gotten
I fervently believe in getting the Bible to the "common people" in the language of their hearts. That's precisely why, at 62, I'm learning American Sign Language. As William Tyndale said so famously, "If God spares my life, I will make the boy that drives the plow to know more of the scriptures than the pope and all his cardinals" (actually, as much as I love Tyndale, he got that from Erasmus' Preface to his 1516 edition of the Greek Text of the New Testament!).
But I am NOT